Walk-n-Roll for Spina Bifida
Dear Participants, Donors, & Sponsors:
Thank you all for the time, money and support you gave on October 31st and before to help make our first annual Walk-N-Roll for Spina Bifida successful! Because of your dedication and work we were able to collect over $31,000 and counting! We are excited to add this new event to the current line of events that we provide here in Arizona.
The Spina Bifida Association of Arizona is dedicated in promoting the awareness of Spina Bifida as well as helping make life a little easier for all those affected. Now because of all your hard work we will be able to improve the programs and services provided.
We are grateful for the generosity of all our sponsors that helped make this event possible. With the help of our presenting sponsor, SBGenetics along with all other sponsors we were able to end Spina Bifida Awareness month with a bang. Thank you Hard Rock Café AZ, Trader Joes, Dunkin Donuts, TropicalSno as well as all other sponsors who made this event possible.
We are also grateful for the support of all the volunteers that helped with the setup and logistics of the event, including all board of directors with their tireless efforts.
Warmly,
SBAAZ Board of Directors
Event presented by...
Research has shown that genetics play a role in Spina Bifida. The Spina Bifida Genetics Research Project (SBgenetics.org) is conducting research to identify genetic factors associated with an increased risk for Spina Bifida, so that some day it may be prevented.
The study is analyzing the genes involved in how the body utilizes the vitamin folic acid. One potential outcome of this research could be a genetic test to identify women at-risk for having a baby affected by Spina Bifida, who then would be prescribed high dose folic acid. This is the standard treatment for women who have had a previous Spina Bifida affected pregnancy.
The Spina Bifida Genetics Research Project is seeking mothers of children with Spina Bifida, and if possible, their child, to participate in the study. Participation entails completing a short survey and providing a saliva sample. When the research project is complete, participants will be given the opportunity to receive their personal genetic information.
Visit www.SBgenetics.org for more information and to enroll. Participants may choose to receive a $10 Target Gift Card or have a $10 donation made to the Spina Bifida Association on their behalf.
Visit our special Walk-n-Roll website »
